Talk about whatever you want to here, but stay correct
#321025 by JuZ
Wed Jul 30, 2014 10:18 pm
Wow that next to last post was obviously written under the influence of sleep deprivation!

So I've started a blog as a way to keep folks updated.

http://daddygetsdizzy.blogspot.com.au

My usual incoherent stuff, but I'll be sure to include info on the treatment whenever I have it.
#321396 by KeasbyNights
Wed Aug 20, 2014 9:07 pm
So I just found this. I knew you had some sort of illness Justin and wasn't sure what it was. Silly me. I'll be forwarding you some money soon. Won't be much but I hope it can in some way repay the kind words you're always so generous with here for others. You're a great man, I can tell.

Also shared it to my Facebook peeps.
#321710 by JuZ
Mon Sep 08, 2014 3:19 am
Time for a big old bump to let you all know that the gofundme page no longer takes donations.

This is because we have what we need to start the treatment! Thank you wonderful HDA people! The monthly costs will be high but we will be able to manage them. :D

I have a blog here:

http://daddygetsdizzy.blogspot.com.au/?m=1

Which has a new entry. I'll also post all my private business here of course, heh.

Be well and may the world continue to flourish with generous souls like you in it.
#322333 by JuZ
Fri Oct 10, 2014 2:43 pm
Hi all!

As mentioned elsewhere, my wife has a new job 1200km south of here and we move in a week.

This means more money, much more access to nieces and nephew, aunties and uncle and the kids' grandparents (my folks) who are deaf which has meant very limited communication up here for the kids. It also means I have an appointment in Sydney to see Professor Bill Gibson, one of the world's leading specialists in Meniere's. I'll finally be getting an electroencephalograph - the definitive yet for hydrops. And s genuine expert opinion. After nearly 10 years! Yay!

Bad news is it means I need to find a new GP in my new town to get on board with the treatment. But I have several recommendations and need only of them to say yes and we're off and running.

I'm halfway through a blog post and will put it up as soon as I can.

Have a great day, friends!
#322336 by KeasbyNights
Fri Oct 10, 2014 9:41 pm
That's all really great news. :D Finding a new GP shouldn't be too much trouble either, though maybe a tad bit stressful if you have anyone say no. You'll be alright Justin. Just remember you've got a lot of people on your team!
#322346 by JuZ
Sat Oct 11, 2014 8:04 pm
Thanks guys.

I got absurdly anxious about the GP thing for about 2 days and of course that made me sick. So I put a stop to that.

If a few GPs say no, they say no. As long as I find one eventually it's all good.

Cheers :)
#323773 by JuZ
Mon Jan 19, 2015 4:14 am
Hi all.

Time for a quick update. Not that anyone seems to be around right now!

My old GP from my home town said yes straight away so that was great. Initial blood tests indicate that I'm a good candidate and I will be seeing one of the world's pioneering ENT specialists in Sydney in early Feb for some highly specialised tests for endolymphatic hydrops (plus some ear and balance tests).

I started elements of the treatment two weeks ago but today was the big one - my first day fully on board with the treatment.

(Hooray!!)

It's a long haul - it will be six months to two years before we really get a handle on HOW effective this will be for me.

But I am hugely hopeful and as always I'm grateful for the support shown by everyone here.

I may also be starting a new full time job in the next month which is a tremendously positive yet daunting step. The first few months of this protocol can be a challenge for some so it's now up to me to fight through any challenges and get through the year.

Thanks for reading and be well my friends :)

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